Treatment with salanersen slowed neurodegeneration and improved motor function in children with SMA in a Phase 1 trial, ...

Living with SMA isn't just about survival, says columnist. There's also the emotional weight of preparing for the next crisis ...

Buckle up, it's going to be an incredible ride, columnist Helen Baldwin says in a letter to her 13-year-old self.

Earlier this month, I took a trip to England with my dad and my friend Anna — my first overseas adventure. I’m posting my photos on my Instagram account (you have to follow me to see them) and will be ...

Many SMA patients continue to see gains in motor function with long-term Spinraza treatment, a real-world study from ...

The use of salbutamol may improve upper limb strength and aid breathing in young children with spinal muscular atrophy, an analysis found.

Meeting your new medical team is never easy, especially when you have a complex and rare disease like SMA, columnist Alyssa ...

For people with spinal muscular atrophy (SMA), these changes could make flying more manageable. But air travel may still feel like a major undertaking when you rely on a wheelchair. Kevan Chandler, ...

Muscle-related body composition measures improved in children with spinal muscular atrophy (SMA) types 2 and 3 who were treated with Spinraza (nusinersen), and the improvements correlated with better ...

The case of a woman with spinal muscular atrophy (SMA) type 2 who developed an abnormal accumulation of molecules called ketone bodies was described in a recent case report in the U.S. Called ...

There are tools and therapies to address some of these issues. Your SMA care team can show you how to use them at home safely and effectively.. Bilevel positive airway pressure (BiPAP) If your ...

On the afternoon of July 7, 1997, a sickening thud and screams hailed from the front yard. Our older children, Matthew, 10, and Katie, 7, had been playing with our two dogs when one of them, Duffy, ...