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Columnist Candace Semien describes the sort of personal surveillance she wants in case she has a lupus flare or other emergency.
“If you don’t answer to anyone, you will start lying to yourself,” a financial consultant once explained to me. His wisdom, albeit a bit sharp in tone, transcended his focus on money management into ...
The U.S. Food and Drug Administration (FDA) has approved Benlysta (belimumab) in an autoinjector that can be used at home as an add-on treatment for children ages 5 and older with active lupus ...
Pain wakes me at 3:18 a.m., reminding me that lupus stopped me from working. “Yeah, I know,” I sleep-whisper and stare at the digital clock until box breathing cools me back to sleep. An hour later, 4 ...
One year of treatment with dapirolizumab pegol can reduce fatigue and ease disease activity in people with systemic lupus erythematosus (SLE), according to new results from a Phase 3 clinical trial.
I think I’ve fallen in a “Doctor Who” rabbit hole. If you’ve ever watched the show, you know the TARDIS, whose letters stand for time and relative dimension in space. On the outside, it looks like a ...
For many of us living with a chronic illness, there typically comes a time when we desire to share our story, help others, and dip our toe into the pool of advocacy. Having met thousands of people ...
People with systemic lupus erythematosus (SLE) who have antibodies that target the mitochondrial transcription factor A (TFAM) protein are more likely to develop certain blood clotting complications, ...
Like any relationship, a patient-doctor one has rules about how to engage and communicate. They’re typically in writing, bearing the patient’s signature of agreement. I’ve seen the rules posted on ...
If, like me, you have a chronic illness, have you ever sat with the thought that maybe you did something to cause it? I certainly have. Over the years, I’ve noticed that many conversations I’ve had ...
We’ve heard it said that “you can’t pour from an empty cup.” It’s a reminder to “fill” ourselves before we “pour out” for someone else. Pouring out is an action we do to improve someone else’s life.
Among the various time-management strategies is one where a person breaks up their day into 30-minute blocks and assigns tasks or activities for each block of the 24 hours. Some bullet journalists ...
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