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The Clinical Specimen Resource Library is intended to facilitate sharing of patient-derived specimens and lab-derived resources managed outside of the CF Foundation. This is designed to be a ...
Pain is a common issue for many people with cystic fibrosis. People with CF can experience a range of different types of pain from CF. Your CF care team can work with you to develop a plan to decrease ...
When my newborn was diagnosed with cystic fibrosis, I was overwhelmed by a whirlwind of emotions — from grief and anger to love and hope.
Help make CF stand for Cure Found.
My world was turned upside down in just a few weeks when a routine exacerbation quickly escalated into a lung transplant. I wasn’t prepared to tackle a transplant, but with time and support from my ...
Growing up with cystic fibrosis, I’ve had to do things a little differently than other kids my age. And while living with CF isn’t easy, I’ve been blessed with friends and family who support me.
This month is a celebration of you — the individuals, families, and supporters who make up the CF community. You can join us by sharing your accomplishments, milestones, and hopes for the future on ...
People who are diagnosed with CF late in life — I mean over age 50 — have different experiences from others in the CF community. We don’t just have different needs; we have different characteristics.
My ability to strike a healthy balance between school, work, and my personal life has been significantly hindered by living with cystic fibrosis. CF isn’t just a condition — it’s a full-time ...
One of my favorite things I did when I was younger was visit the CF database and search for the mutations my sister and I share — we are the only two people in the entire database that have our ...
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