It is not just a renovation after the fire, but a complete overhaul including removing decades of crud and soot built up since the last restoration. 现如今，从尖顶到彩绘玻璃，巴黎圣母院已经焕然一新了。

The family hope that by sharing their story and experiences they can educate people about albinism and help remove the stigma attached to it. 这家人希望通过分享他们的故事和经历，可以向大众 普及 和白化病有关的知识，并帮助消除其带来的 耻辱感。